A week after my operation I went back to the hospital for a check up. They started my lengthening and I went to see the physio.
Lengthening involves turning screws on my frame to a certain point each day. Mr Walsh, did the first day, then Mum did the second day. On the third day I have a rest. Each day we wind, we wind 1mm on the screw, this lengthens the frame by about 1.5mm because the screws are on a diagonal; the hypotenuse stuff that Mum tried to explain. Mr Walsh gave Mum a sheet with a progamme on it. There are six screws to wind.
At the physio we did some leg exercises. There are two exercises. One of them I have to squeeze my knee down, the other I have to point and flex my foot to touch Mum’s hand with my toes. I do each one of these ten time for three lots. They feel super duper sore on my pins and I do not like doing them. I have to do them to keep my leg strong and stretch my muscles that are tight.
Getting in and out of the car is very hard. It sometimes hurts me. There are lots of steps:
- Mum gets me out of the house on my crutches.
- Mum gets the seat ready by putting a cushion on it.
- Mum lifts me into the car on a diagonal with my leg on the seat beside me.
- Mum puts the wheelchair into the boot.
It can take 20 minutes to leave the house, but Mum is managing okay. I’m looking forward to my friend Amelia’s birthday party on Sunday and I’m excited that I can go.
This is a picture of the frame. You can see the screws going diagonally between the rings and the pins going into my leg. The foam is to stop the frame from hurting my other leg. we have taken it off because it was not comfortable.